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Health
Disability is not Inability

DISABILITY AND HIV/AIDS.
3rd August 2006

In developing countries including Kenya, access to health is a major challenge for disabled communities. HIV/AIDS management programmes are developed on the foundations of the existing health programmes which are not disability friendly. Kenya National AIDS Strategic Plan 2006 - 2010 identifies disability as one of the vulnerable groups. The plan identifies various priority areas that should be implemented to make AIDS management disability-friendly. The persons with disabilities strategic plan 2006 – 2009 also outlines various issues including access to health as the strategic issues to be tackled.

Disability means a physical, sensory, mental or other impairment, including any visual, hearing, learning or physical incapability, which impacts adversely on social, economic or environmental participation. Estimates derived from the National Census 1999, puts disabled populations at 10 percent of the 30 million Kenyans. A health system that denies access to ten percent of Kenyan population needs to be overhauled.

HIV/AIDS priority areas include one, prevention of new infections; second, improve quality of life of disabled people infected and affected with HIV/AIDS by improving treatment and care, protection or rights access to effective services for infected and affected disabled persons. Finally mitigation of socio-economic impact by adopting existing programmes and develop innovative responses to reduce the impact of the epidemic on disabled communities and their access to social services and economic productivity.

Disability-friendliness of our health system is determined by the quality of access to health services in public health institutions. A quality standard of HIV/AIDS services and programmes needs several adjustments to make them friendly to disability. Areas that need adjustments in health sector include medical staff attitudes to disabled clients, proficiency in sign language, attitudes of disabled clients to health facilities.

Inteventions that increase partcipation.

Interventions that Increase participation of disabled persons in the programmes are more successful. There are various disability organizations and projects that have successfully organized disability friendly interventions. Liverpool Deaf VCT programme, Kenya national Deaf AIDS education programme, Dandora Deaf Self help group under Handicap International are among the existing deaf programmes that have been successfully adjusted to meet the direct needs of the deaf. There also exists programmes’ targeting the physically disabled like UDEK AIDs programme. There are also programmes that target the blind and the deafblind.

Most of the above are awareness interventions which require adjustment of materials. Communication challenges are best overcomes by adjusting the information education and communication (IEC) materials to be disability-friendly. There are three Deaf VCT sites which were developed by training deaf counselors and peer educators. One of the major challenges of participation of the disabled groups is lack of training facilities to enable the disability organizations to fully provide HIV/AIDS related services.

The visually impaired, are also disadvantaged in the sense that they cannot see the results whenever they are tested in a VCT, when someone with visual impairments visits a health facility, are the staff within the facility able to handle him/her? The mentally challenged should be given equal access to HIV/AIDS services within consent. There are risks issues involving the disabled community sectors like the mentally challenged, deaf, deafblind and the blind especially in this era in which there is a significant rise in cases of rape.

Health facilites

Most of the health facilities are not built in a way that the persons with physical challenged can access them freely; they need someone to assist them in seeing the doctors.

The Deafblind are also a group that many people have not come across but they are quite a number in Kenya and yet they have an association, this is a group that uses tactile sign language fully for their day to day activities. There should be medical personnel responsible for providing public health service to each and every disability within equity and effectiveness. The public funding of disability organizations dealing with special groups should be regular and constitutionally guaranteed. Service providers in public health institutions targeting the special groups should be given additional incentives to increase quality of service and commitment.

Disability organizations in each constituency should be represented in the constituency AIDS committees to enable more projects that are disability friendly to be implemented. There need to be a national AIDS disability policy programme to direct various quality standards for service provision.

Adjustments
Adjustment of AIDs programmes to be disability friendly demands more strategic partnerships that involves all from faith organizations to government and the private sector. Management of HIV/AIDS among the PWDs can be achieved if the society starts by integrating them into social life. It begins by de-stigmatising disability. Only then can we share PWDs pain living with infection of the pandemic.

Category: Health

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